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About This Substack

Welcome to the Myeloma Fighters Substack, a dedicated space for patients and caregivers navigating the journey of multiple myeloma. I'm Dr Andrew Cowan, MD, a medical oncologist who focuses on multiple myeloma at Fred Hutchinson Cancer Center and UW Medicine. My passion for research, development of new drugs, plasma cell disorders, combined with my clinical experience, drives me to share insights, updates, and supportive resources tailored for those affected by this complex condition.

Our Mission

The mission of this Substack is to demystify multiple myeloma by providing clear, compassionate, and accurate information. We understand the challenges faced by patients and their caregivers, and we strive to offer a source of solace and clarity in the sea of medical jargon and uncertainty. We also aim to help disseminate the latest research findings.

What to Expect

Here, you will find:

  • Latest Research & Treatments: Updates on the latest advancements in multiple myeloma research and treatments, broken down into understandable terms.

  • Patient-Centered Resources: Guides, tips, and strategies to help patients manage symptoms, treatment side effects, and the emotional aspects of living with multiple myeloma.

  • Caregiver Support: Dedicated content to assist caregivers in their crucial role, including coping mechanisms, communication tips, and self-care strategies.

  • Community Stories: Personal stories and experiences from patients and caregivers, fostering a sense of community and shared understanding.

  • Expert Insights: Guest posts and interviews with other healthcare professionals specializing in multiple myeloma.

Engagement & Feedback

This is more than just a newsletter; it's a community. Your thoughts, experiences, and feedback are invaluable. Please feel free to share your stories, ask questions, and suggest topics you'd like to see covered. Together, we can make this a nurturing and informative space for everyone impacted by multiple myeloma.

Disclaimer

The information provided here is for educational purposes only and is not intended as medical advice. Always consult your healthcare provider for advice specific to your health condition.

Conflict of Interest Statement

Dr Andrew Cowan, an author of this publication, has the following conflicts of interest: Research funding: Janssen, Harpoon, Abbvie, Bristol Myers Squibb, Sanofi, Nektar, Juno/Celgene, Adaptive Biotechnologies. Consultancy: Bristol Myers Squibb, Sanofi, Adaptive Biotechnologies, Janssen, Sebia.

Please note: Opinions expressed in this Substack by myself and other writers are our own, and do not represent the positions of UW Medicine.

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A newsletter about multiple myeloma for patients, caregivers, and advocates.

People

I am a medical oncologist at Fred Hutch Cancer Center / UW Medicine who focuses on treatment and research in multiple myeloma. My research interests include clinical trials, AI in medicine, novel biomarkers, and immunotherapy
Writer. Thinker. Baker. Myeloma Manager.
Dr. Fonseca is the Getz Family Professor of Cancer, Chief Innovation Officer at the Mayo Clinic in Arizona. Dr Fonseca focuses on the research, diagnosis and treatment of myeloma and related plasma cell disorders.
Myeloma Patient since 2015, facilitator of the Northwest Multiple Myeloma Fighters support group